Ressources utiles

Lignes directrices

US Cystic Fibrosis Foundation Infection Prevention and Control Guideline for Cystic Fibrosis: 2013 Update

European Cystic Fibrosis Society Standards of Care: Best Practice Guidelines

UK Cystic Fibrosis Trust Standards of Care and Good Clinical Practice for the Physiotherapy Management of Cystic Fibrosis

Références :

1. Gao J, et al. Worldwide rates of diagnosis and effective treatment for cystic fibrosis. Journal of Cystic Fibrosis 2022;21:456-462. https://www.cysticfibrosisjournal.com/article/S1569-1993(22)00031-5/fulltext

2. Qu’est-ce que la fibrose kystique? Fibrose kystique Canada. https://www.fibrosekystique.ca/about-cf/quest-ce-que-la-fibrose-kystique (Dernière consultation le 16 janvier 2024).

3. Adriana Haack, et al. Pathophysiology of cystic fibrosis and drugs used in associated digestive tract diseases. World Journal of Gastroenterology 2013;19(46):8552-8561. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3870500/.

4. Cystic Fibrosis. National Heart, Lung and Blood Institute. https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis (Dernière consultation le 16 janvier 2024).

5. Le rapport de données annuelles du registre canadien sur la fibrose kystique. Fibrose kystique Canada. https://www.fibrosekystique.ca/nos-programmes/registre-canadien-sur-la-fibrose-kystique.

6. Cystic Fibrosis, Symptoms & causes. Mayo Clinic. https://www.mayoclinic.org/diseases-conditions/cystic-fibrosis/symptoms-causes/syc-20353700 (Dernière consultation le 16 janvier 2024).

7. Carrie A. Schram. Atypical cystic fibrosis. Canadian Family Physician. 2012;58(12):1341-1345. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3520658/. 

8. Pseudomonas. Cystic Fibrosis Foundation. https://www.cff.org/Life-With-CF/Daily-Life/Germs-and-Staying-Healthy/What-Are-Germs/Pseudomonas/ (Dernière consultation le 16 janvier 2024).

9. Lisa Saiman, et al. Cystic Fibrosis Foundation Guideline. Infection Prevention and Control Guideline for Cystic Fibrosis: 2013 Update. Infection Control and Hospital Epidemiology. 2014;35(S1):S1-S67. https://www.jstor.org/stable/10.1086/676882#metadata_info_tab_contents. 

10. Cystic fibrosis bugs. Cystic Fibrosis Trust. https://www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/how-does-cystic-fibrosis-affect-the-body/symptoms-of-cystic-fibrosis/lungs/bugs (Dernière consultation le 16 janvier 2024).

11. Férec C, Scotet V. Genetics of cystic fibrosis : Basics. 2020;27(1):eS4-eS7. https://pubmed.ncbi.nlm.nih.gov/32172936/ 

12. Cystic Fibrosis, Diagnosis & treatment. Mayo Clinic. https://www.mayoclinic.org/diseases-conditions/cystic-fibrosis/diagnosis-treatment/drc-20353706 (Dernière consultation le 16 janvier 2024).

13. Physiotherapy for people with Cystic Fibrosis: from infant to adult. The International Physiotherapy Group for Cystic Fibrosis. Seventh edition, 2019. https://www.ecfs.eu/sites/default/files/general-content-files/working-groups/IPG%20CF_Blue%20Booklet_7th%20edition%202019.pdf

14. Lisa Morrison, et al. Standards of Care and Good Clinical Practice for the Physiotherapy Management of Cystic Fibrosis. Cystic Fibrosis Trust. Fourth edition, November 2020. https://www.cysticfibrosis.org.uk/about-us/resources-for-cf-professionals/consensus-documents

15. FK Canada. Accès aux médicaments. https://www.fibrosekystique.ca/nos-programmes/advocacy/acces-aux-medicaments (Dernière consultation le 16 janvier 2024).